Intended for parents of children with disabilities, this book includes 40 essays written by successful adult role models who share what it is like to grow up with a disability. Authors with different kinds of disabilities and/or special health care needs were asked to write about something that they wish their own parents had read or been told while they were growing up. The essays are divided into five sections that address: appreciation for parents who provided unconditional love and a sense of belonging in a family; how parents addressed the unique needs of their children with disabilities and became the most important experts in the lives of their children; different approaches to parental expectations and standards; the need to talk about intimacy and sexuality to children with disabilities; and the importance, for both parents and children, of learning about a child's disability and how to facilitate necessary accommodations so that each child can expect to enjoy a full life. The book concludes with an essay on disability culture. A brief resources section is also included that identifies Internet sites where parents may find additional useful support and information.
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