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Training Materials This care notebook template is designed to assist caregivers of children with special health care needs to maintain a record of their child's care, services, providers, and notes. Families and caregivers should bring their child's care notebook to all medical appointments, therapies, conferences, and vacations. The care notebook can be used to ensure that care is comprehensive, coordinated, and family-centered. Each link on the Web page allows the download of a compressed file (ZIP) containing a collection of customizable documents that make up a care notebook. (Author abstract modified)
This fact sheet explores results of the 2009/2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) and compares and contrasts the Maternal and Child Health Bureau’s six outcomes for South Dakota and the nation. It begins with background information on the Maternal and Child Health Bureau, the Maternal and Child Health Services Black Grant, and the six core outcomes that describe what families should expect for the service system. The six care areas are: partnering with families in shared decision-making for child’s optimal health; coordinated, ongoing, comprehensive care…
This edition of South Dakota Kids Count Quarterly examines results of the 2009/2010 National Survey of Children with Special Health Care Needs (NS-CSHCN). More specifically, it compares and contrasts six outcomes identified by the Maternal and Child Health Bureau for Native Americans/Alaskan Natives in seven States: Arizona, Alaska, Montana, New Mexico, North Dakota, Oklahoma, and South Dakota. Data on 40,242 children were obtained from the Data Resource Center for Child & Adolescent Health. Six State outcomes are discussed and data compared in the following core outcomes: families are…
Raising children with developmental, emotional, behavioral or medical special needs inarguably impacts a marriage. The manner in which it changes, however, is not determined by the nature or severity of the child's disorder nor even by the number of children with disabilities in a family; the impact is determined by the manner in which the couple handles intensive child-rearing demands and related stressors. Juggling the seemingly endless logistical and emotional issues associated with parenting children with special needs can cause couples to make their relationship much less of a…
Other, Fact Sheet
In the U.S., 1 in 68 children is diagnosed with autism spectrum disorder (ASD). In fact, almost every school and university in the country has students with autism. While the diagnosis is common, public understanding of autism is not. The lack of understanding around the condition contributes to discrimination, verbal abuse, even physical violence. A recent study reveals that children with autism are five times more likely to be bullied than their peers—treatment no child should endure. While the differences between people with autism and their peers may seem significant, children share…
This fact sheet features a comic strip of two women discussing how they help their children learn to make decisions for themselves. The story offers several strategies that parents can use to help their children and adolescents learn how to make healthy decisions for themselves. Note: PDF version available.
